|
Winter 2011
(PDF)
Interventions for
Autism Spectrum Disorders
Todd Kopelman, PhD,
Scott Lindgren, PhD, and David Wacker, PhD
Center for Disabilities and Development
University of Iowa Children’s Hospital
Introduction
Substantial progress has been made in
identifying interventions that address the
core deficits of Autism Spectrum Disorders
(ASDs) and improve the quality of life for
many individuals with an autism spectrum
diagnosis.
Identifying appropriate interventions can
be an overwhelming and frustrating
experience for parents. A recent Google
search using the term “autism treatment”
revealed over 750,000 results!
Unfortunately, many of these “treatments” are costly, have limited scientific
support, and may result in families
failing to seek out interventions that are
more likely to have beneficial effects.
In 2009, the
National
Autism Center released The
National Standards Report, a
comprehensive review of the level of
scientific evidence available to
support applied treatments for
individuals with ASDs. Based on a review of the research evidence,
treatments were separated into three
categories: (1) established, (2)
emerging, and 3) not established.
The authors of the report
noted that the majority of the
established treatments were developed
in the field of Applied Behavior
Analysis (ABA). The following is a
brief overview of ABA treatments
as well as information about
selected other treatments for
autism that have received support
in the research literature.
Applied Behavior Analysis (ABA)
ABA is the scientific
study of the influence of environmental
events on a range of socially
significant behaviors. The term ‘ABA’
does not refer to any specific
program or procedure. Instead, ABA
is used more generally to
describe programs that adhere to
the following principles:
-
an
emphasis on observable behaviors,
-
the systematic analysis and
measurement
of relations
between environment and behavior,
-
the use of single-subject
design to show
the relation
between behavior and the
environment, and
-
a focus on behaviors
of social relevance.
Within the field of
autism, ABA programs typically focus
on teaching new skills and
generalizing the use of these skills
across different settings,
reinforcing desirable behaviors, and
decreasing behaviors of concern. ABA procedures are used with
children with ASDs to teach
specific academic and vocational
skills; to increase speech, social
skills, and play skills; and to
decrease problem behaviors.
Multiple studies published over the
past four decades have
demonstrated that many children who
receive intensive ABA
interventions make substantial growth in
their learning, adaptive skills, and
behaviors.
The specific approaches
used in ABA programs vary. Some
ABA programs focus on teaching specific skills through
the use of massed learning trials,
with trials conducted between a
therapist and a child at a table.
Recently, a greater emphasis has been
placed on blending ABA principles
into developmentally sequenced, play-based programs that
are implemented in
naturalistic settings. For challenging behaviors, the most common approach
is to first conduct a functional
analysis, an assessment of the
environmental events that elicit and maintain problem behavior.
After the function(s) for the
problem behavior has been
identified, the child is then taught to communicate for desired outcomes
and to replace problem behavior
with equivalent communications
(e.g., to request a toy or a
break from work).
Visual Supports
Many children with an ASD
diagnosis experience difficulties in
the areas of receptive and
expressive language, attention, and
memory. For many children with
this learning profile, the use
of visual supports has been shown to
have a positive effect on
learning, behavior, and social
skills. Examples of visual interventions
with research support include
the use of schedules, story-based
instruction (for example,
Social
Stories), picture exchange systems,
and structured teaching (e.g.,
Project TEACCH).
In many cases, visual
supports are used as a package along
with other interventions.
Other Therapies
Social skills training is
important in reducing social
deficits in ASDs, and effective approaches
include ABA methods, peer-based
intervention strategies, and social skills groups. Use of
cognitive behavior therapy,
especially structured
“self-management” programs designed for
higher functioning
children/adolescents or adults with ASD, can
support management of anxiety,
depression, anger control, and social
skill development. Targeted
therapies (e.g., speech/language,
OT) can be used to increase
communication skills and to improve
independence in activities of daily living.
Although many
children with ASD have “sensory”
issues that interfere with
learning or social behavior, the theories
behind sensory integration (SI)
therapy for ASD lack scientific
support. Despite this fact, some of
the activities emphasized in
“sensory” therapy may help children
to become more physically
active, to accept a wider range of
sensory experiences, or to be more
receptive to reinforcement for
desired behavior when used as part
of a comprehensive ASD
intervention program.
Medical Treatment
Medications are sometimes
used to target symptoms
experienced by some children with
ASDs. Currently, one medication,
risperidone, has received approval from the Food and Drug
Administration (FDA) for the treatment of irritability (including
aggression, self-injury, and tantrums)
in children with ASDs between
the ages of 5 and 16 years.
Although risperidone is the only
FDA approved medication, there are other medications with
fewer side effects that may
often be tried first.
Other
medications are often prescribed on an
“off-label” basis to target symptoms
such as aggression, depression,
anxiety, obsessive-compulsive
tendencies, sleep difficulties, and
attention deficits. Children with
ASDs may not respond to medications
in the same way as typically
developing children. It is important for parents to work
closely with a provider with expertise
in the field of autism to closely
monitor response to the
medication. Additional medical care
may be needed to manage problems
with seizures, gastrointestinal
problems, and dietary imbalances. Genetic testing using
microarray analyses is also now being
recommended for children with ASDs.
Complementary and Alternative Medicine (CAM) Treatments
It has been estimated that around 30 percent of
parents with a child with autism
choose to use complementary and alternative medicine
(CAM). Common examples of CAMs include melatonin, a
gluten-free, casein-free (GFCF) diet,
different enzymes and vitamins
(e.g., B6, Magnesium, B12,
probiotics), and body-based systems such as
deep pressure. Research has
found that melatonin can help
children with ASDs to fall asleep. At
this time, limited research exists to
support the efficacy of other
CAMs. Some approaches, such as
chelation (the administration of
medication to help the body excrete
heavy metals) lack
scientifically valid research to support their
efficacy and can pose serious
safety concerns. Parents considering CAMs are encouraged to consult
closely with their child’s
healthcare provider to receive up-to-date
information about the intervention so that appropriate
monitoring and evaluation can occur.
General Intervention Guidelines
Treatment is likely to be
most effective when it is
individualized and when it is conducted
as soon as possible after concerns
are noted. Before treatment
begins, it is therefore important to
conduct a comprehensive assessment
of the child’s developmental
status.
Key members of the assessment
team often include a
developmental
pediatrician or other
healthcare provider with expertise in
autism, a speech and language
pathologist, a psychologist, an
educational consultant, and an
occupational therapist. Results from
the evaluation can be used by parents and the school team to develop
a treatment program that is
tailored to the child’s strengths
and needs. As is true for any child
with a serious neurodevelopmental
disability, providing a “medical home” that can ensure care
coordination, parent training, and
family support is critically important to
a comprehensive plan of
care.
For adolescents and adults
with ASD, vocational training, job
coaching, and interventions to
improve social and behavioral adjustment
are crucial to support
independence in living and working in
community settings. Although
distinctions have been made between ASD services that are
“habilitative” (building new skills) or
“rehabilitative” (restoring lost skills),
legal decisions have questioned
the use of these distinctions.
Current thinking supports the need
for preventive, medical, and
remedial services when these
interventions have been recommended by a health care practitioner
for the reduction of a physical or
mental disability and for
ensuring the best possible level of
functioning. Whenever possible,
recommended services should be based
on proven interventions with
a strong evidence base.
Resources
|